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Family Support and Advocacy
General information for all families

PA/DE families click icons for general+state information
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Contents

Parent and Professional Training

Many states have comprehensive information on assisting families with transition. One that is particularly good is the Lifespans Transition Center at OCALI. While this site was developed for individuals and families in Ohio, it is universal in scope.


Advocacy

While going through the process of transition, there are times when individuals and families may need to use advocacy skills to obtain funding, services, and or the specific types of supports to which they are entitled. By definition, advocacy is a process completed by individual(s) or organizations to obtain resources or impact public policy.

See the following resources for more helpful tips and information:


Respite Services

Respite is a service provided on a short-term, emergency basis to relieve the primary caregivers. Waiver-funded respite typically has an annual four-week limit for services. Respite Services may be provided by a specialized agency in the person’s home, the home of a family member or friend, or in an agency-licensed respite home. Respite services may also be provided by someone that the person and family already knows who is qualified and willing to provide assistance either in the person’s home, the home of a family member or a friend’s home.
Respite - Overnight Camp: The temporary support/supervision of individuals in the absence/relief of their regular caregivers. This service is provided in residential camp settings. Respite in a residential camp is not contingent upon an emergency situation. This service shall not exceed four (4) weeks within a fiscal year except by waiver from regional offices on an individual basis.

Respite - Day Camp The temporary support/supervision of individuals in the absence/relief of their regular caregivers. Respite in a day camp setting is not contingent upon an emergency situation. The recommended maximum of four (4) sessions per family per month may be adjusted by County MH or I/DD Offices based on individual need.
The family aide may be responsible for the care and supervision of family members other than the family member with autism.
Home rehabilitation. This service is the minor renovation to a family's home to enable the continued care and support of the individual with autism in the home.

To find respite services near you, visit the National Respite Locator at http://archrespite.org/respitelocator.

For excellent consumer information, visit ARCH's site.

For additional information on Caregiver Support, visit the Family Caregiver Alliance.

Resources

Family Support, Education and Advocacy Resources